The WU-Minn HCP Consortium requires that the following Data Use Terms be signed, submitted and approved for investigators to receive access to Restricted Data generated by HCP (Fill out Electronic Restricted Access Application | Download Application PDF).
Given the distinctive family structure of the HCP population under study (twins and their non-twin siblings), these special precautions are essential in order to protect the privacy of our subjects and to prevent any inappropriate disclosure of subject identity.
A. Definitions of Restricted Data Elements covered by these terms:
Important: See section C for information on how these data elements may and may not be used in publications
B. Who Can Obtain Access:
Investigators are expected to meet one of the following criteria to be qualified to receive access to HCP Restricted Data:
C. Obligations of Investigators
IN ADDITION TO the rules an investigator must accept in the Open Access Data Use Terms, to protect the privacy of HCP subjects one must agree to abide by the following terms. Example scenarios illustrating these terms can be found at: https://www.humanconnectome.org/study/hcp-young-adult/document/restricted-data-usage
Additional Applicant Information
Investigators who wish to qualify for access to Restricted Data under the provisions of section B.3 (above) should send citations of selected scientific publications and/or the name of the PI who will be providing a letter of reference as outlined in B.3 to Ms. Erin Reid at firstname.lastname@example.org.